Monday, April 7, 2008

MONDAY MORNING

Molly continues to improve and had a much needed day of rest yesterday. However, yesterday (Sunday) did not go as well as we had hoped for. Molly and I were so looking forward to a nice day of rest, friends coming to visit and a trip outside. However, we had a "down" day yesterday. Molly just didn't feel very good all day was unable to eat very much and did not get out of bed. On top of not feeling well she was very disappointed that she felt bad and could not visit with friends the way she wanted too. It was great to see Tammy, Scott & Lane as well as Michelle, Sonja and Zach and my Aunt Marty and Molly said she was glad to see everyone, she just wished she had felt better so she could have enjoyed it more. Not sure is the dialysis from Satruday was catching up with her or what, but she felt a little nausious and had a small fever most of the day. Again, it was not a bad day as the doctors and nurses continue to be impressed with her progress, she jsut didn't feel as good as she had hoped for. On a side note to that, she was hot all day. This is comical as I was freezing all day because she was so hot we had the heat off in her room. It felt like a meat locker. She was asleep for a little bit, I was covered up in the chair and shivering, when she woke up she said, "can you turn the fan on and turn down the heat some more." What a role reversal, I am the one usually hot and she is always covered up and cold. We laughed about that. When I left last night she was feeling a little better but was just exhausted and worn out. I think the dialysis from Saturday, her trying too hard to eat, the new room, the excitement of having friends visit, the reduction of her pain meds, etc. just caused her body a day to adjust. Spring is beginning to "spring" in Ann Arbor as the temperature is warmer, the sun is out, the birds are singing, the kids are playing in the yards, and things are beginning to green up. Since this week is a week of rest for Molly, we are hoping to get outside a lot this week and enjoy the weather and just take it easy as we prepare for grafts, therapy, etc. next week. In addition to this, we have a lot of things to talk about, now that her voice is getting stronger. I have decisions to make regarding my role in Toastmasters in the coming year, I/we have several requests for speaking opportunities and need to determine how soon and what to share, what color to paint the barn, decide if she/we want to participate in the "nocturnal" dialysis program, etc., etc. I continue to stay with Dirk and Melissa (cousins) and their two girls in South Lyon about 20 minutes from the hospital. It is great and saves a ton on hotel expenses, plus it is a lot like being at home with their dog "Jersey" and their cat "Kastania". We talked the other day that we can definatley see the light at the end of the tunnel, while it is just a pin sized light, it is there. We are probably looking at 4-6 weeks to get back to Ohio at this point, but, these 4-6 weeks should go by quickly as we will be transitioning into a rehab setting and mind set in the next week. Once we are in rehab, Molly's days will be filled with lots of activity and I am sure she will be exhausted at the end of the day from all the hard work she will have to do. It is amazing to me how slowly the clock can run with seconds painfully seeming like hours, yet days are gone in the blink of an eye. I have a hard time believing we have been here for over a month and the awesome progress Molly has made during that time. She amazes me every day with her strength, determination, positive attitude and will to get better and not let this experience get her down. Her strength helps me as does the many prayers, comments, and cards. We continue to talk a lot about "whats next" and each day we are more certain than the day before that God has given us this experience to help others. We know that Molly has already been a tremendous inspiration to others with her pure determination, but we have also received many "thank yous" indicating that this experience has opened a lot of peoples eyes to their own health care. I have seen how important it is to be a partner with your doctor and health care team, and not just an observer. It is this "total team" approach that enables you and/or your loved one to get the right care at the right time. Everyone is different and what might be the traditional course of care for most may not always be right for everyone, so being a member of the team is important. SPECIFIC PRAYER NEEDS
  • Wounds to continue to heal
  • Voice to continue to get stronger
  • Kidneys to continue to "wake up"
  • Overall strength
  • Finger, hand and arm function
  • Spirit and positive outlook to continue
  • Dale & Terri Crandall and family (Dale is a long-time friend and a fellow Toastmaster in Greenville). Terri recently broke her hip, Dale's father passed away and several other family tragedies have recently happend to the Crandal family that is requiring them to be in multiple places at the same time. In addition, Dale has been challenged with his own health issues.

Keep us, and the many many others struggling with health issues in your daily prayers. Also, don't forget to pray for yourselves as well.

God Bless,

Love,

Jamey & Molly

5 comments:

Sandy said...

Molly and Jamey,
I hope the nauseousness has completely passed and that you are feeling stronger again today so that you might get out to enjoy this glorious sunshine! It is truly magnificent out.
Hugs,
Sandy

Unknown said...

Hi Molly & Jamey,
We're so GLAD that things are going so well. We think of you daily.
Take Care
Treva, Sierra, Rick & Tray R

Tammy Smith said...

Molly & Jamey,
I can't tell you how much we enjoyed our visit yesterday. Any time we get with Molly is a blessing. Molly, you looked so good!! Your smile just lights up the room. We were sooooo happy to see that smile. Get your rest and make sure Jamey figures out how to use your hair pins!
Love you lots!!!
Tammy, Scott and Lane

Angela said...

Dear Molly and Jamey,

I just want you both to know that you are in our thoughts and prayers everyday. I am amazed at how far you have come in such a short time. We really miss you at school and hope to see your smiling face again soon.

Take care and God Bless.
Love, Angela(Oda)Fair and Family

zachyb24 said...

Molly and Jamey,

Jamey you are right Molly has always been the one to get cold. I guess you are going to have to lean on her to warm up. I am still using the heating blanket at nights because I get cold.
I think I will not have to the rest of this week as it is warming up.
We didn't think Molly was feeling to good yesterday, tell her it was still great seeing her that is for sure.
Zach is sitting at the Desk making a calender for Aunt Molly hoping that those weeks go by fast so she can get back towards home.
He always so wants Aunt Molly to know he hit the ball great tonight at baseball practice.
We will be praying for all the needs that you have brought up. I know with all that you guys have to think through God will give the answers. He did to you in sending Molly to U of M..
He will this also.
We love you guys,
Michelle, Zach, Dan and Sonja