Thursday, July 17, 2008
Tuesday, July 1, 2008
AmazingProgress
Friday, June 20, 2008
ProgressContinues
- Hands and Legs to progressing toward complete, full and normal function
- Strength - physical and mental to keep moving forward
Again, simply saying thank you never seems say enough for all the prayers, thoughts, cards, gifts, visits, phone calls, and acts of kindness, but know that it is truly from our hearts,
THANK YOU all, and God Bless!
Love,
Jamey and Molly
Friday, June 13, 2008
The New 'NORMAL'
- Legs - continue to heal and gain strength and are actively wearing stump shrinkers. Within 2-4 weeks should be ready to be fitted for prosthetics.
- Hands - continue to show great progress, still a ways to go to return to 'normal' function.
- Job(Molly) - Molly has been moved to kindergarten for next year, with all the preparatory time needed, not sure at this point if fall is going to be possible or not. Puts Molly and the school in a quandary as to what to do. The school is not pushing us to make a decision and are being respectful of our needs, yet they also will need to know something about the fall sometime in the fairly near future.
- Job (Jamey) - As the bills and expenses are now starting to come in and we are getting a clearer view of how much we will owe/need, getting back to work is important. Being self employed has been a blessing as I have been able to take the time needed to care for Molly, however, no work = no income. Getting back to find clients, speaking gigs, and other opportunities is important.
- Insurance - The schools policy has limited number of therapy visits, so having enough visits to get Molly back to full function is important and that we do not run out before reaching that goal.
- Opportunity - Molly and I both know that we have a great opportunity to help others by sharing our experience, deciding how and when to do that is important to us.
God Bless you all and thank you!
Love,
Molly and Jamey
Friday, June 6, 2008
OK We're Back
- We have been back to U of M 2 times since our last post for follow up appointments. Each of these have went very well with the last one being this past Monday & Tuesday and Molly being completely released from their care with NO RESTRICTIONS. This means that her skin grafts have taken well and she can now be weight bearing on her legs, can begin wearing the special pressure garments on her stumps called "stump shrinkers" to begin shaping her legs to prepare them for her prosthetics.
- During the time we were waiting for this news, we have found a prosthetist (the guy who will make, adjust and fit Molly's legs) right here in Greenville. He comes highly recommended and we both like him and feel very comfortable with him. this is so important as we will form a life-long relationship with Carl and will see him frequently as much as daily in the very beginning. so being close is a real blessing.
- Hands! Hands are getting better by the day, but still have a ways to go for them to return to normal. Between the lack of oxygen, the compartment syndrome, crushed nerves, tendons, etc and the lack of use, the hands have really suffered quite a blow and will take lots more therapy to get them back. The good news is that all the surgeons, doctors, therapist that we have seen have all said that her hands should return to complete normal function.
- Of course Molly is not back to work, but I am not either. Of course to many that know me can't see a difference! Anyway, the time is getting close for me to get back to work at least part time and begin working with clients again as well as looking for some speaking gigs. I am very excited as I told Molly I had been looking for some new speech material so thanks to her I definitely have new speech material. Of course she did not have to go to that extreme to help me out, but nonetheless, I have new material.
Since we are now back online and are fully prepared to keep this blog updated regularly, we have decided to not only keep posting updates on Molly's progress, but to also share some of the things we have observed, learned and gained from this experience including things that we once took for granted and things we now have a whole new perspective on. In addition we will continue to post specific things needing prayer, as we have seen so many answered prayers and how powerful prayer can be.
SPECIFIC PRAYER NEEDS
- HANDS! Progress has been great, but a long ways to go yet to get back to full function with strength flexibility and sensation.
- LEGS! Continued strength and flexibility so prosthetics can be fitted as soon as possible (hopefully within 2-4 weeks) Included with legs is skin integrity as being weight bearing on her knees, wearing the pressure garments, and the prosthetics themselves can cause skin tears and skin breakdown, all of which can delay progress.
- SPIRITS! Right now our spirits are good, but we still have our days and moments and the road ahead is still long and keeping a positive mental attitude has and will continue to keep us going.
- CLARITY! Molly and I still discuss and struggle with what exactly to do with this experience. While we both feel and believe very strongly that we are being called to do something to help others, we are not sure exactly what that is. Along with that is the financial aspect of doing something to help others by sharing our story but still holding down jobs to make a living and finding a balance between the two.
Again, please forgive us for taking so long to update you on Molly's progress. Here is our promise to you: "We promise to keep this blog updated regularly as much as daily, but never longer than one week!" We are open to ideas from you on what you would like to see in the blog. Please email them to us at jameyandmolly@gmail.com.
Please know that all your prayers and positive thoughts have gotten us through the last 3 months, and we know that they will continue to sustain us through the rest of this journey. Thank you all and God bless each of you for your constant prayers.
Love,
Jamey and Molly
Thursday, May 8, 2008
HAPPIEST OF NEWS!
Tuesday, May 6, 2008
TUESDAY, AFTER SURGERY
Monday, May 5, 2008
MONDAY AFTERNOON
- SURGERY! We think surgery is scheduled at 10:30 tomorrow morning, pray for safe, successful and quick surgery of the last small graft on my left stump
- HANDS & FINGERS! They continue to get better, while therapy is painful and still have a ways to go, still need prayer for complete returned function and use.
- Nancy, My roommate. She will be going to a nursing home for a few months before getting to go home. They are a great family and she needs prayers for physical and emotional healing. she gets down about her situation from time to time.
We continue to be amazed by all the cards and prayers we receive daily. We know that the speed of my recovery has to do with all the positive thoughts and prayers. Jamey and I still have a long way to go on this journey to return to normal and to decide what and how to use this experience, so continued prayers are definitely needed.
God Bless Each Of You!
Love,
Molly & Jamey
Saturday, May 3, 2008
AFTER THE BIG DAY OUT
- Hand and Fingers! They are slowly getting better, but a ways to go yet to get total function and feeling back in them
- Wounds! continued healing of legs and stumps
- Stumps! Healing of course, but also strengthening, reduced contractures, and shaping needed to get a good fit for new legs.
- SURGERY! Successful, quick, and safe skin graft on Tuesday. (We will update on Monday evening or when we know a more definite time)
- Spirits! They are good and we are thankful, however, we still have a lot of bridges to cross and challenges to face, so continue to pray for Jamey and Ito remain positive as we continue on our journey
- Safe Travels! for Jamey as he travels to and from the hospital and friend and family as they make visits.
God Bless You All for your continued prayers and thoughts, we could never had made it this far with out you, and will not be able to make it further without each and every one of you. You are all very special and dear to us both! Thank You!
Love,
Molly and Jamey
Friday, May 2, 2008
FRIDAY EVENING
- Hands and fingers to keep gaining feeling and flexibility
- Healing of open areas on stumps and overall healing of grafts
- Keeping high spirits for both of us as we continue to discover our new definition of 'normal' and return home to everyday life in the next few weeks.
- Finding the right outpatient therapy center that can provide the needed services
- Finding the right prosthetist when the time comes to be fitted with new legs
- Clarity for what we are supposed to do to help others from this experience
Thank you will never suffice for what each of you have done for us, but nonetheless, Thank You for the prayers, positive thoughts, cards, gifts, comments, visits, etc. etc. etc.
God Bless you all!
Love,
Molly & Jamey
Wednesday, April 30, 2008
AFTER FIRST SHOWER
Tuesday, April 29, 2008
TUESDAY MORNING
- Continued Healing of wounds and legs
- Hands to keep getting feeling and use (they are doing good, still a ways to go yet)
- Care Team to keep making good decisions about continued care plan
- Come Home on May 14th
Thanks to all of you for the continued prayers and positive thoughts. Keep them up!
God Bless You All!
Love,
Molly & Jamey
Saturday, April 26, 2008
SATURDAY MORNING
- HANDS & FINGERS
- MAY 14th - Come Home date
- CONTINUED HEALING OF WOUNDS & STUMPS
- STRENGTH - mental and physical to keep enduring long therapy sessions
- CLARITY - Molly and I keep talking and praying for what will be the best way to share our story to help others.
- REHAB PATIENTS - There are unbelievable stories in the rehab unit of people enduring great illness and injury.
God Bless You All!
Love,
Molly and Jamey
Thursday, April 24, 2008
FIRST DAY OF REHAB
- HANDS and FINGERS!!!
- HEALING OF WOUNDS!!!
- STRENGTH FOR THERAPY
- SPIRITS TO REMAIN HIGH
- TRAVEL for me and all our friends and family visiting
God Bless You All!
Love,
Jamey and Molly
Wednesday, April 23, 2008
WEDNESDAY MORNING
- Hands! Her strength will come, but much of her independence and ability to excel in rehab is linked to her use of her hands.
- Spirits! Keeping our spirits high during rehab will go a long way to its success and getting home quicker.
- Accomodations! First time having a roommate, plus smaller room and does not have the window side, so we are not able to "decorate" like we had in the other rooms, also, hoping to get along with roommate and does not get disturbed at night so Molly can sleep.
- Travel! I am headed home tonight late and will be home through the weekend. Debby is coming over tomorrow and staying through the weekend. Certain family and friends will be traveling this weekend to visit.
- Raymond (Molly's dad)! I am traveling home to take Raymond to the Dayton Heart Hospital for some tests. Pray that they are ok and he will not need any additional procedures, surgeries, or other specific care.
Thank you all again and again for your constant prayers and positive energy being sent our way. We feel it and know it makes a huge difference.
God Bless You All!
Love,
Jamey and Molly
Tuesday, April 22, 2008
TUESDAY MORNING
Sunday, April 20, 2008
SUNDAY MORNING
- HANDS & FINGERS!!!
- WOUND & GRAFT HEALING!!!
- STRENGTH (Physical and Mental)!!!
- WISDOM & CLARITY!!!
- All the nurses, doctors, therapists, techs, etc. in the Trauma Burn Center and the SICU that played a huge role in Molly's recover
- All of our friends and family and all of our new friends for their support, prayers, visits, comments, cards, gifts, etc. You all are truly special to us.
God Bless You All!!!
Next Blog will be from 6A (our new home for the next few week) Rehab. We are sure that if they are a half as good as the rest of this amazing facility that they will be a cut above anyone else out there!
Love,
Molly & Jamey
Saturday, April 19, 2008
SATURDAY
- HANDS & FINGERS!!! Once she gets more use of her hands and fingers she will not be as bored and will feel more normal again as she will be able to provide a lot of her own care, hold a book and turn pages so she can read, write, use the computer, etc.
- HEALING OF WOUNDS!!! Her wounds look great, but still have a long way to go, once healed she will be able to do a lot more without concern of injuring them, etc
- SPIRITS!!! Hers and mine. Some of the reality of everything is becoming more and more evident as we begin thinking about getting home and all the normal things we take for granted that will be impacted.
God and all of your continued prayers and positive thoughts have gotten us this far and we have no doubt they will get us all the way home and beyond. THANK YOU!
God Bless you all,
Love,
Jamey and Molly
Friday, April 18, 2008
FRIDAY MORNING
- Rehab goes well and we can come straight home after that
- Healing of wounds and stumps so prosthetics can be fitted and we can begin that journey
- Spirit, for both of us as the reality of everything will become more and more real as we enter back into 'normal' life
- Sally, our new friend as she is moving into an apartment on her own that has stairs and she needs to rehab again after having additional surgery.
God Bless you all, and thanks again for all the support, gifts, cards, and especially the prayers. They do indeed work and are answered!
Love,
Jamey and Molly
Thursday, April 17, 2008
THURSDAY MORNING
- NO MORE DIALYSIS
- Continued healing of wounds and grafts
- Get moved to Rehab
- Quick return o function and use of hands and fingers
- Able to find a suitable facility close to home (I will be working with the rehab team here to determine what a facility close to home will need and offers, then start making phone calls)
- Strength (physical and mental) to get us over the next several weeks/months. While it has been long and hard up till this point, the next few weeks will be some of the hardest.
God Bless You All!
Love,
Jamey and Molly
Wednesday, April 16, 2008
WEDNESDAY'S QUIZ
- Who, at the last minute) did NOT have to have dialysis yesterday?
- Who, for the second time in two days, spent over an hour in Physical Therapy yesterday?
- Who, for the first time since being sick, spoke to her dad on the phone last night?
If you answered anyone but Molly, then you are either on the wrong blog, or in need of serious consultation (feel free to contact me separately and I can hook you up with some good health care folks, it will however, require a short drive to Ann Arbor)
Molly had a great day yesterday. It all started when i arrived around 9am to pick up her breakfast tray to take it to her in the dialysis unit, and she was still in her room. I at first thought something was wrong or they had forgotten her, but she told me, in her yet stronger almost normal voice, that they ran blood work first thing in the morning and said her Creatine levels are stable and she did not need to go to dialysis. Her level was at 1.6, anything under 1 being "normal" but more important than the level is its stability and she was at 1.6 on Monday and Sunday. So no dialysis. Later in the day Dr. Heung, one of the nephrologists (kidney doctor) came in and was very excited and pleased. He said they would continue to monitor her blood levels each day and would make a decision each day about dialysis based on that. He did say though that because of how quickly her numbers and output leveled out over the past few days that he believes we are done with dialysis and her kidneys are functioning almost normally again. YEAH!!!
Molly also went to the one of the therapy rooms and spent an hour with Sophie the physical therapist on sitting up, stretching, transferring from bed to chair, etc. She did great! Needed a fair amount of assistance to do most of these things, but was able to do them all. and Sophie was very excited and pleased with how well she could do everything. Molly has a long way to go to regain her strength and flexibility and to relearn how to do somethings, but she is motivated as am I and the therapist is certain everything will come back, and come back quickly.
In addition to the physical therapy, Molly had a long visit from Terry in Occupational Therapy. this was done in her room, but did a lot of exercises and activities. Including a visit from Carol the "Occupational Hand Therapist", (how specialized is that?) to re-design some splints for her hands and to determine some overall function. Carol's department is right next to the rehab center and has scheduled Molly to come to the Hand Therapy department each day after she completes the intense rehab each day. This will be for both hands as the left had the amputations of the index finger and half the thumb. Also for the right hand as it is very weak and she has lost a lot of function with it due to the compartment syndrome and many weeks of non-use. Carol said her hand function will come back and they have a lot to work with, it will just take some time and hard work.
In addition to all this, the dietitian was in and felt that if Molly can up her protein intake daily that she would make a recommendation to the doctors to discontinue the Dobbhoff tube (feeding tube). Although that may still be a few days as she still needs the extremely high calorie count to help with the wound healing. But should be very soon to get rid of the tube.
Well, today is the big day, as the dressings come off today to let the doc's and surgeons take a look at the skin grafts and the donor site. If all looks good, we will be looking at just a few more days in the Trauma Burn Unit and then on to Rehab. Her wounds, other than the grafts and donor sight now only require daily cocoa butter. My guess will be that within a day or two her graft and donor site will only need cocoa butter as well. Then will be the big move.
Once in rehab she will be assigned several therapist that all specialize in different areas. They will each see her 2X per day for approximately for an hour each time. There will be very few breaks during the day because every single thing she will do will be turned into a therapy session. Then once that is all over she will see the hand specialist for an hour. This will require a lot of strength, courage, pain tolerance, stamina, and mental strength as many of the things they will be having Molly do were once second nature and required no thought, and now those same things will require a lot of energy and thought to even attempt. But if anyone can do it it will be Molly, and I am sure she will excel and will impress the therapists the same way she has impressed all the doctors and nurses in the other units thus far.
SPECIFIC PRAYER NEEDS
- NO MORE DIALYSIS, NO MORE DIALYSIS, NO MORE DIALYSIS
- Get the wounds healed so she can reduce her calorie intake and get the feeding tube out.
- Hand function so she can start doing more things on her own
- Physical strength to endure rehab
- Mental strength to endure rehab as well as the continue to endure her recovery and being away from home. Being away from home is beginning to wear at both of us.
- Nurses and doctors in trauma burn (the unit has been on lock-down, because a new patient was admitted due to a brutal assault and the assailant has not been caught. This puts the staff on edge.)
Molly and I continue to thank God each day for all of you and your support. I know I say this about everyday, but there is no way to fully express our thanks for the thoughts, prayers, cards, comments, emails, gifts, support. Each and everyone is felt and appreciated. Thank You!
God Bless you,
Love,
Molly and Jamey
Tuesday, April 15, 2008
TUESDAY MORNING
- Kidneys to continue to improve and to get off dialysis
- Wounds to heal so she can get to rehab this week
- Rehab to go well so we can get back to OHIO in a few weeks
- Wisdom to ask the right questions as we look for a place for her to get rehab closer to home
- Strength, courage and wisdom as we begin to look at how we want to help others and to spread the word.
- Travel mercies for all the friends and family coming up to see Molly
- Trauma/Burn nurses working this week. They have several very difficult cases this week, both from the illness/injury perspective, but also from the patient and their family as well.
Thanks again for all the prayers and positive thoughts, keep them coming!
God Bless each of you today,
Love,
Molly and Jamey
Saturday, April 12, 2008
SATURDAY EVENING
- Kidneys continue to do their job so she will not need dialysis anymore
- Keep eating well so she can get the feeding tube out for good soon
- Healing of grafts and donor sites, so she can get to rehab
- Travel safety for friends and family, many will be traveling over the next few weeks.
God Bless you all,
Love,
Jamey & Molly
Friday, April 11, 2008
FRIDAY MORNING
- Successful surgery and for the grafts to take completely
- No more than 3-5 days are needed to be in bed and still
- Start rehab in 7-10 days.
- Kidneys
- Travel, I am headed home after surgery, mom & dad, aunt Marty & Ashley are here this weekend, as are some school friends on Sunday.
God Bless you all,
Love, Jamey and Molly
Thursday, April 10, 2008
THURSDAY MORNING
- Kidneys still, they are coming around, but not quite there yet
- Skin and wound healing. Getting closer by the day, but still a ways to go
- Feeding tube to be removed, once the wounds heal she will not require as many calories, as well as as her appeite comes back she can eat more (hopefully very very soon)
- Voice, getting stronger, just not quite there yet
- Spirits (hers and mine)
- Travel for family and friends & me (going home this weekend, I have to do taxes, Uncle Sam still needs his payday I guess)
- Raymond ( Molly's dad) Keep his spirits up as well
- Paula and Bennie (Molly's cousins) each of them facing some possible health issues
God Bless you all, you are all such a comfort and blessing to Molly and I. Thanks for all you have done and continue to do.
Love,
Jamey & Molly.
Wednesday, April 9, 2008
Contact Information
WEDNESDAY MORNING
- Kidneys, kidneys, kidneys (oops, she only has two) The sooner they start working normally, the sooner she can get off dialysis, and the quicker the rest of her recovery/rehab will be.
- Continued healing of her legs so they can be grafted and get her to acute rehab
- Fingers, hands and arms. Strength and functionality so she can continue to refine her motor skills to do the normal things we all take for granted
- Voice, continues to get stronger, but not there yet, and everyday "down" day sets the voice back a little as well
- Spirits, to keep them high as they are best medicine on the "bad" days
- Me, I feel myself getting tired at times and not as motivated as I need to be to stay an active cheerleader and a part of Molly's healthcare team with the doctors, nurses, therapists, etc, and to ask the right questions and make proper suggestions for her care.
- Travel mercies. Lots of family and friends on the road this week, weekend and next week.
- Raymond (Molly's dad) He is staying strong, but he really misses Molly and the trip up here is very hard on him, so he probably will not see her until we get her back to Ohio.
- Raymond agian for his health. He and I are going to see his doctor on Friday for a consultation regarding the results about his recent cardiology tests.
Thanks agian for all you all do! You will never know how much it means to Molly & I. God Bless each of you!
Love,
Jamey & Molly